The authors aimed to characterise a large international cohort of children with nystagmus. Data were taken from a prospective database which was started in 2010. Up to 2020, this contained 1774 patients with nystagmus from 38 US states and 30 countries. Six hundred were aged <18 years. All had >1 year follow-up. Mean age was 15 ±14 years; 58% female, 42% male, 45% white. Infantile nystagmus syndrome was present in 449 (75%). One-hundred-and-four had neuro nystagmus, 37 with fusion maldevelopment nystagmus, and ten with spasmus nutans. Strabismus was present in 64% and 56% had an abnormal head posture. Significant refractive error was present in 94%. Most with infantile nystagmus syndrome had an eccentric null zone, strabismus and ametropia. Acquired types were mostly pendular or vestibular nystagmus. Treatment for 95% included optical, medical and / or surgical options.
Types of nystagmus and associations in a large international database for nystagmus
Reviewed by Fiona Rowe
Demographic and clinical characteristics of 600 children with nystagmus.
CONTRIBUTOR
Fiona Rowe (Prof)
Institute of Population Health, University of Liverpool, UK.
View Full Profile
