The SCONe project, run by optometrists, ophthalmologists, and researchers from the University of Edinburgh, and funded by Sight Scotland, is appealing for participants to take part in a patient and public involvement (PPI) group focused on revolutionising the detection and management of age-related macular degeneration (AMD).

AMD is the most common vision impairment in the older population and impacts an estimated 60,000 people in Scotland. SCONe research is seeking to find the early signs of AMD, so people can receive support earlier and adjust to living with AMD sooner. SCONe is inviting anybody with lived experience of AMD, caregivers, friends or family of people with AMD, and regular visitors to optometry practices, to come along to take part in its PPI group. Participants could help transform how AMD is detected and make a real difference for future generations.

SCONe, the Scottish Collaborative Optometry-Ophthalmology Network e-research, is a new collaborative venture aiming to build a Scotland-wide retinal image resource for innovation in eye research, healthcare, and education. SCONe is taking two complimentary approaches to try and speed up the detection of AMD at an early stage. Firstly, the team is meticulously analysing the SCONe dataset to extract crucial structural information about the retina. This involves quantifying various parameters, including the total area of drusen, fatty deposits beneath the retina that can sometimes indicate an elevated risk of AMD.

Furthermore, the team is harnessing the power of modern machine learning and artificial intelligence (AI) to develop a groundbreaking predictive model. Unlike traditional methods that rely on manual measurements, this AI-driven approach uses raw retinal images to assess a patient's risk of developing AMD. By automating the analysis process, this model promises to streamline screening procedures and facilitate early intervention.

Professor Baljean Dhillon, Professor of Clinical Ophthalmology, Centre for Clinical Brain Sciences, The University of Edinburgh, explains: “The PPI group offers a unique opportunity for participants to contribute directly to the development of new strategies and technologies aimed at combating AMD. Our research represents a significant step forward in the fight against AMD. By combining cutting-edge technology with comprehensive data analysis, we aim to transform how we detect and manage this debilitating condition."

Craig Spalding, Chief Executive of Sight Scotland, and Sight Scotland Veterans, adds: “"As advocates for the visually impaired, we understand the profound impact that AMD can have on individuals and their families. By investing in research focused on early detection, we aim to empower healthcare professionals with the tools and knowledge needed to intervene swiftly so hopefully less people have to suffer."

SCONe’s Patient and Public Involvement group focused on AMD and the impacts of AMD is taking place on 03 May 2024 at Surgeons Hall in Edinburgh. For more information or to register to join please contact arubio@ed.ac.uk or call 07876647083. Participants in the group will be compensated for their time.

Sight Scotland, RS MacDonald Trust and the Royal College of Surgeons Edinburgh fund SCONe.

For more information on SCONe please visit: https://www.ed.ac.uk/clinical-sciences/ophthalmology/scone

For more information on Sight Scotland please visit: sightscotland.org.uk