Charles Bonnet Syndrome online Patient Information Event - 16 November - has had a ground-breaking response.
Registration has had to be capped at 500.
There has been a ground-breaking response to the online Charles Bonnet Syndrome Patient Information event on 16 November. To be hosted by NIHR Moorfields Biomedical Research Centre on behalf of Esme's Umbrella (the campaign to raise awareness of CBS, source funding for research and create ways to support people who develop the condition), this event marks CBS Awareness Day and comes exactly five years after the launch of Esme's Umbrella.
Registration has had to be capped at 500 - but the event will be recorded.
Clinicians, other healthcare professionals and medical students have registered to join people from the CBS community who live with the condition.
This response confirms that Charles Bonnet Syndrome is, at last, being de-mystified and de-stigmatised, thanks to the campaign led by Esme's Umbrella, which, last year, persuaded the World Health Organisation to give CBS a coding in ICD 11.
Judith Potts, Founder of Esme's Umbrella
Dr Dominic ffytche, King's College London (Medical Adviser)
(CBS is a condition which can develop when over 60% of eyesight is lost. It causes vivid, silent, visual hallucinations. In the UK, there are an estimated 1 million people of all ages - children too - living with the condition.)