Ocular Melanoma UK (OMUK) the nation’s only charity dedicated exclusively to supporting those affected by ocular melanoma, today launched Ocular Melanoma October – a nationwide campaign highlighting the realities of living with this rare, life-threatening and often misunderstood cancer.
Each year, between 650 - 750 people in the UK are diagnosed with ocular melanoma, one of the most common primary eye cancer in adults [1]. Symptoms are often subtle such as blurred vision, flashes, floaters, or changes in colour perception. In some cases, there are no symptoms at all, so it’s important to routinely get checked. OMUK’s latest community survey alarmingly identified approximately three in four patients are diagnosed after a routine eye test [2], underlining the critical role optometrists play in early detection and saving lives.
“I went to the GP many times and was told it was just migraines. An optician trainee saved my life.” shared one OMUK patient member.
OMUK’s latest community survey also underscores the long-term toll of the disease: 90% of patients experience fear, anxiety and depression, particularly around their regular scans, a phenomenon the community calls “scanxiety” [3]. The research also showed that many patients continue to live with lasting side effects years after treatment, revealing the hidden, ongoing impact of this rare cancer.
Jo Gumbs, CEO of Ocular Melanoma UK, said: “No one should face ocular melanoma alone. Through Ocular Melanoma October, we want to raise awareness of this rare disease, ensure earlier detection, and highlight the ongoing needs of patients long after treatment.”
Jo Gumbs, OMUK CEO.
Together, OMUK and its community are working to transform awareness into action — and to ensure good eye health is a priority for all. OMUK provides vital services including emotional and psychological support, clear and accessible patient information, peer support groups (online and in person), and an annual patient conference. Nearly nine in ten patients describe OMUK as a “lifeline” during their journey.
The charity now calling on the public to take action by three simple actions this October:
- Booking an eye test
- Sharing Ocular Melanoma October content on social media
- Joining community activities or donate to support patients
For more information on Ocular Melanoma UK, to access support services, or to get involved in Ocular Melanoma October, please visit https://omuk.org/ocular-melanoma-october/.
- https://www.nhs.uk/conditions/eye-cancer/
- Data on file.
- Data on file.
